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327

I have a blood clot

21 comments, 226 views, posted 2:53 pm 01/08/2012 in Personal Threads by TapedToMyChair
TapedToMyChair has 389 posts, 72 threads, 0 points, location: Germany

My body officially hates my guts. Not only do I have all these back problems, but now I found out I have a blood clot in my lower leg. I flew back to Germany last Friday. 7 and a half hour flight. Got up once to piss and that was it. I'd never had problems before and I've done 10 hour flights without getting up. But this one was the kicker I suppose. As soon as I got off the plane, my leg cramped up and both legs swelled. And when the pain in my left leg didn't go away by Tuesday, I made an appointment for this Thursday. The doctor called me that same day when he saw what the appointment was for. He had me go get an ultrasound on my legs to check for DVT (deep vein thrombosis.)

Okay, this bitch not only ignored everything I said, but didn't even scan my calf, which is where the pain is. She scanned the inside of my thighs and told me that DVTs ONLY HAPPEN IN THE THIGH. This is bullshit. They thought I had one in my arm a few months ago. My friend's wife had one in her arm the month before that. So that entire ultrasound was useless.

I went in to my doctor's office and told him what happened. And after examining my leg in person he said he was 100% sure it was a blood clot and scheduled me another ultrasound with a German doctor that I saw last time. My doctor on post, in the mean time, started treating me for a blood clot. I'm currently taking blood thinners and having to self inject anticoagulant twice a day. Plus, he changed my birth control and a long list of symptoms that I should go to the hospital for and the number for a Coumatin Clinic.

Today, I went and saw the new ultrasound doctor. They took my blood and did an ultrasound. The blood test came back positive for a clot (which I have no idea how or what they test for) but the doctor couldn't see anything on the ultrasound that looked like a clot. Which means it's definitely not a deep vein but still an important enough vein to cause problems. This whole process just seems so overwhelming and came at the worst time.

I called the Coumatin Clinic today as well. This is where I hit my breaking point. The reality of the situation and the stress hit me really fast. I spent a 30 minute conversation with the people at the clinic. For the next 3 to 6 months, I have to get my finger pricked twice a week to test my blood thickness. It's called the INR Range. Most people's are a 1. The clinic wants blood clot sufferers between a 2 and 3. Below 2, the blood is too thick. And risk of another clot increases. Above 3, blood is too thin and the risk of me bleeding out is dangerous. Essentially, for the next 3 to 6 months my body will be completely regulated based on these tests. The amount of Coumatin I'll be taking will fluctuate depending on my INR Range.

Because of the sensitivity of the medicine and the INR range, I can't drink any alcohol. I have a whole list of foods that I have to moderate or eat more of. I can't travel anywhere for more than a few days and when I do I have to notify the people at the clinic. If I miss a pill or more than one, I risk sending myself to the hospital. Plus, they doubled my blood thinner dose for the next couple days and I feel like absolute crap.

Extra Points Given by:

griffin (25), PiratePoet (25), Quaektem (25), bytehead (25), elsels (25), z0phi3l (10), DarkHelmet (10), djskitzy (20), Cnik (10), Rosie (10), evolution (25), tricpe (25), grnday3415 (25), Viscera (25), bradpitt (15), mohit_117 (10), Bolesta (15)

Comments

1
3:17 pm 01/08/2012

griffin

Well that fucken sucks. Hope you feel better soon!

1
4:06 pm 01/08/2012

aion_z

Why can't you drink? Dehydration makes the blood thicker. Who the bloody hell do these physicians think they are?

1
4:07 pm 01/08/2012

aion_z

Where are your lab tests? Can you scan one or two blood test results so I can have someone else take a look for a second opinion?

1
4:16 pm 01/08/2012

TapedToMyChair

*Drink as in Alcohol. My apologies for the confusion.

0
4:17 pm 01/08/2012

TapedToMyChair

I didn't get the results. They went from the German doctor to my doctor on post.

2
4:27 pm 01/08/2012

aion_z

As far as I know, patients have the right to get test results if you need a second opinion. There is a danger to giving blood thinners. More than once a day is alarming.

1
4:43 pm 01/08/2012

Quaektem

Good luck TMC... take care of yourself, but it seems like the clot was from the flight. A combination of sitting that long, pressure changes and being dehydrated because you're given pathetic amounts of fluids... since we can't bring our own on board anymore... will spike your chances of clots. The treatment seems overboard to me... but without seeing the test results I can't be sure.

1
5:17 pm 01/08/2012

elsels

That truly sucks TTMC, I really hope this resolves quickly but please follow the Drs instructions to the letter. This is serious business, good luck and quick healing. Keep us updated.

0
6:12 pm 01/08/2012

WolfenUWG

Best of luck

3
6:23 pm 01/08/2012

bytehead

Being on coumadin sucks.

Quote by aion_z:
Why can't you drink? Dehydration makes the blood thicker. Who the bloody hell do these physicians think they are?

It actually makes the coumadin a little more effective. She can drink, she just has to drink consistently. Same with the diet restrictions.

Quote by aion_z:
More than once a day is alarming.

Not really. When I was getting my first heart ablation (heart burn without feeling the burn!), I had to inject myself twice a day with heparin to prepare for it, after stopping the coumadin.

But being on rat poison, which is what Coumadin/warfarin is, certainly has it's downsides. After two years of being on it, I was permanently cold. High eighty's and low nineties felt comfortable to me. Seventy five or colder, and I needed longs sleeves and long pants just to get by. And it worked during the Florida summer, but the winter was brutal.

Twice a week should only be short term. Once it's in range, they'll do it once a week, and as long as you stay in range, or at least close to it, they'll extend the time between visits.

I'm on Pradaxa as a thinner now. No testing (they haven't even found a good test to make sure it IS working! :S ), no side effects that I'm experiencing (it's been two years now), so that's nice. The problem is that they haven't worked out an antidote for it yet (besides time, it takes about 12 hours to get it effectively out of one's system), so if I get into an accident and really bleed, it could get hairy. But they are working on that.

2
6:54 pm 01/08/2012

TapedToMyChair

So the cold is normal? I've been freezing my ass off.

0
7:26 pm 01/08/2012

djskitzy

wow... don't get more ill..... or you're getting your ass kicked...

1
8:45 pm 01/08/2012

bytehead

Quote by TapedToMyChair:
So the cold is normal?

Oh yes. It took awhile for me to really notice it. But yes, a definite known side effect.

0
12:07 am 02/08/2012

Rosie

Besides hubby, Bytehead, my colleague also takes warfarin for DVT. He elected to not switch to the new med because warfarin is so much less expensive. And it IS ugly if he has an accident (which he did on a gig in South Africa). But, if you eat dark green leafy veg 3x/week, do that every week. Stay in the groove with your diet.

And get some compression hose. That is, knee highs that are stronger than support hose. They come in pounds of pressure. Doc can tell you what to get. Use them when you will be sitting for long times.

0
3:56 am 02/08/2012

bytehead

There is the expense, and the fact that fact that you can't put the Pradaxa in with the rest of the pills in a kit, you keep it in its bottle until you take it (water damages it), but I was going to go off the warfarin, replacement drug or no. The cold, the wild numbers, even when I was making damn sure my diet was steady in greens and everything, at times, trying to remember and still missing testing appointments (and the waits that could be involved even with the appointments). I had had enough of Coumadin/warfarin when I finally got off it.

Eliquis is the next drug I'm looking at. Works similarly to Pradaxa (and still expensive), but the risk of bleeding to death is practically negligible, about the same as warfarin.

But both Pradaxa and Eliquis are also more effective than warfarin too, mainly due to the fact that those two are much more consistent than warfarin and the vagaries of exactly what one's diet may end up being on affecting warfarin.

1
4:18 am 02/08/2012

evolution

Yikes! I'm sorry to hear that. I hope you get better soon.

1
6:23 am 02/08/2012

tricpe

I hope youv get well soon, TTMC

0
1:49 pm 02/08/2012

Viscera

keepin you in prayers

1
6:46 pm 02/08/2012

mohit_117

Quote by bytehead:
the winter was brutal.


I was going to say that... Though I've never had any such injuries, but I was about to warn you of the winters... it's very cold in germany during winters, and the blood clot would hurt a lot during the cold winters season..

Hope you get well TTMC!!! I hope you get better before this winters, or sooner...!!

0
12:41 am 03/08/2012

Bolesta

I don't have the answer, but I would be very cautious on any treatment.
Both my father and my only sister had brain tumors. The medicine they were given caused blood clots to be formed. The doctors went in to get the clots removed, and my father and sister never made it to their brain surgery operations.

0
7:47 am 05/08/2012

bytehead

Warfarin actually prevents clots, as long as it is strong enough. Trouble is, genetics and diet can affect how strong it is.

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